The Cure Pogz Disorders Foundation was born out of a deep love for Ved, who was diagnosed with a rare POGZ gene mutation at the age of six. This mutation has caused significant developmental delays and other serious health challenges, with no current treatments or cure available. Our foundation was established in March 2024, driven by a mission to develop a gene therapy that could change the future for Ved and others like him.

 

Our journey began with a devastating diagnosis but quickly turned into a relentless pursuit of hope and action. After learning about the potential of cutting-edge science and gene therapy, we realized that a cure is possible—but only with significant research and funding. Today, we are committed to raising $2M to push forward the necessary research and bring a cure within reach.

 

Our work is not just for Ved; it’s for all children and adults affected by POGZ/White Sutton disorders. With your support, we can help them achieve their full potential and pave the way for advancements that could impact a wide range of genetic diseases. Every dollar brings us closer to a cure. Thank you for joining us on this critical journey.